Why We Walk

We walk to unite the millions who have been impacted by CHD.

We walk to provide help by raising vital dollars to continue our missions of cutting-edge research, advocacy and programs.

We walk to honor all those lives touched by CHD.

We walk to educate the CHD community and raise awareness of CHD.


                              Thank You for Walking!

 

Souleigha Curcio, Hypoplastic Left Heart Syndrome

Souleigha (pictured above with mom Denise, above), who celebrated her first birthday in December 2010, was born with hypoplastic left heart syndrome. The more her mother, Denise, learned about Souleigha’s defect and how prevalent yet underfunded CHDs are, the more she wanted to help raise awareness and funds for the cause. (read more)

Amy Fesmire, Tetralogy of Fallot with an Absent Pulmonary Valve

Amy (above, left) will be celebrating her 30th birthday this year by raising money for ACHA at a Philadelphia Phillies game. Her sole mission: to help others learn to live with CHD throughout their lives. Amy, who was born in 1981 with Tetralogy of Fallot and an absent pulmonary valve, was a co-chair of the inaugural Delaware Valley Congenital Heart Walk in 2010. (read more)

Owen Hufner, Coarctation of the Aorta, Bicuspid Aortic Valve

Born on January 13, 2009, Owen (at right) was a “pleasant surprise,” according to his mother, Beth. While Owen was tested in the womb by a pediatric cardiologist to rule out a variance, as well as a smaller infant than her other sons, Beth says when he was born he looked “the picture of health.” (read more

Jeanette Milliner, Anomalous Malformation of the Right Coronary Artery

Jeanette (at right) started having chest pains in 1995, and her life changed in April 1996—when she had a heart attack. Jeanette left her job in payroll accounting at a large publishing company on disability, never to return. (read more)
 




About the Adult Congenital Heart Association 



 
Our Mission

To improve the quality of life and extend the lives of congenital heart disease survivors through education, outreach, advocacy
and promotion of research. www.achaheart.org


About The Children’s Heart Foundation





Our Mission

To fund the most promising research to advance the diagnosis, treatment and prevention of congenital heart disease. www.childrensheartfoundation.org


 
 

 

Questions?
Contact us at info@congenitalheartwalk.org
(855) CHD-WALK
(855) 243-9255

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